Privacy

Everyone deserves a secure, private place to explore and understand their genetics. At LifeNome, we put you in control of deciding what information our clients want to learn and what information they want to share. We’re committed to complying with all applicable privacy and data protection laws and empowering our customers to make informed decisions about how their information is used and shared. Visit our Privacy Policy Statement to learn about our approach to privacy and data protection.

Please contact us at info@lifenome.com if you have questions.

Meaningful Choice

LifeNome gives control over genetic information to its clients. We want them to decide how their information is stored, used and with whom it is shared.

Clients’ decisions concerning how information is stored, used and shared can be changed at any time. Go to “account settings” when you are logged into your LifeNome account. For a more detailed description about these settings, see our Terms of Service.

Privacy by design

We take great care to design our products and services with privacy in mind. And we think it is important for clients to understand how we handle personal information. Below is an overview of the information we collect, how it is used and when it is disclosed.

Types of information we collect

We collect personal information from clients when they register and use the site, such as your name, email and web behavior information (such as your IP address). Through files and the survey responses clients provide to us, we collect genetic, phenotypic and familial information.

How we store personal information

Personal and registration information is stored separately from any genetic information to reduce the likelihood that personal and genetic information is identified. Personal information is assigned a randomized customer identification number for identification and customer support services.

How we keep research details private

If clients provide responses to our online surveys and opt into our research program, the genetic information is stripped of personally identifying information and transferred into our research environment where it is stored with survey response data and is assigned a randomized research identification number.

Third Party Sharing

We will not sell, lease or rent individual-level information to any third party or to a third party for research purposes without explicit consent. However, we do use and share aggregate information with third parties in order to perform business development, initiate research and improve our services.

Aggregate information has been stripped of personal details (e.g., name and contact information) and aggregated with the information of others so that individuals cannot reasonably be identified.

Research participation

LifeNome offers clients the opportunity to participate in a new way of conducting research. Participating in our research is completely voluntary. Clients can choose not to consent to research, and choosing not to participate will not impact their LifeNome experience.

If you choose to consent to participate in research, your data will be used to help power the work done by LifeNome scientists or third-party researchers working with LifeNome. Consenting allows our researchers, or approved third-party researchers, to use a client’s de-identified data in aggregate for a variety of studies.
Customers can opt in or opt out of our research at any time. If you opt out, we will discontinue using your information for research within 30 days.

Learn more about LifeNome research here.

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